Carcinoid Cancer is often known as cancer in slow motion. Dave Thomas, the founder of Wendy’s hamburger food chain had Carcinoid for 10 years before it metastasized to his liver and in 2002 he died at the age of 69.
Some of the Carcinoid Syndrome Symptoms are:
- Uncontrollable diarrhea
- Low blood pressure
- Asthma like wheezing
- Heart damage/rapid heart beat/Heart valvular lesions
- Cramping/abdominal pain
- Peripheral edema - a swelling of the ankles, legs, hands and arms, or neck and face.
- Cyanosis - characteristic bluish skin spots that appear after flushing, and are produced by a lack of oygenated blood circulation.
- Pellagra - nutritional deficiency that causes symptoms such as skin rash
- Telangiectasia - reddish spots or veins that appear most often on the face, chest or arms.
Jan 30, 2004 Sharon Regional 5HIAA urine 24/HR
Feb 4, 2004 Sharon Regional liver needle biopsy
Friday the 13th Feb 2004 Sharon Reg. 1st Carcinoid diagnosis
On my 44th birthday, March 10, 2004 I had an appointment at a Pittsburgh, Pa hospital for more testing. The night before the actual test, I was given several doses of radiation and then 24 hours later went through a barrage of testing. My mom, Chrissy and friend, Carol and I spent the night in a hotel close to the hospital.
During the scan I was thinking how cruel the nursing staff was to be eating their lunch in front of a woman who hadn’t been allowed to eat for two days. Then I had a thought. “Someone has to help the doctors and nurses believe in miracles; and restore their compassion, someone needs to spur them on to do their jobs in a spirit of excellence while anxiously awaiting a healing from Someone much bigger than themselves.”
After lying on a cold, hard, metal table for literally hours during the testing, we once again received another Carcinoid diagnosis. This wasn’t going to stop us. We immediately made an appointment with a doctor from John Hopkins in Baltimore, Maryland.
Funny story about John Hopkins: first what we were expecting the hospital to look like and what John Hopkins actually looks like was astounding. As we drove toward the hospital, it seemed we were in a ghetto like none I’ve ever experienced before. Once in the hospital, I was wondering if maybe God was going to do something out of the ordinary through this chance meeting with the young, good looking Dr. John Doe (name changed for obvious reasons).
So in just a few short months, we traveled as far as from Pittsburgh, Pa to John Hopkins Hospital in Baltimore, Maryland only to hear the same diagnosis. Finally, I knew that I needed to resolve to the fact that I wasn’t going to get a different diagnosis and wasn’t going to find someone with a magical cure.
May 8, 2004 OSU Cancer Hosp ABCD lesions in liver growing in size
June 24, 2004 OSU Cancer Hosp Clincial Trial cancelled due to sudden death side effects
On June 2004, I was scheduled for an experimental, clinical trial. The doctor had explained the risk involved but it was my only hope of a cure. Two days before I was to begin the treatments, the trial was shut down.
Oct 21, 2004 OSU Cancer Hosp CT Scan & appt.
Jan 8, 2005 OSU Cancer Hosp CT Scan & appt.
Feb 24, 2005 OSU Cancer Hosp cholecystectomy (gallbladder removed because Sandostatin was causing gallbladder sludge)
Dec 14, 2006 OSU Cancer Hosp CT Scan & appt.
Dec 15, 2006 OSU Cancer Hosp small bowel resection with side to side anastomosis
Feb 23. 2006 OSU Cancer Hosp CT Scan & appt.
Mar 8, 2006 OSU Cancer Hosp CT Scan & appt.
Jan 4, 2007 OSU Cancer Hosp CT Scan & appt.
May 10, 2007 OSU Cancer Hosp CT Scan & appt.
June 6, 2008 OSU Cancer Hosp CT Scan & appt.
You can read more about my Chemo Embolization in Chapter Six.
Aug 18, 2008 OSU Cancer Hosp CT Scan & appt.
Aug 24, 2008 OSU Cancer Hosp CT Scan & appt.
Oct 9, 2008 OSU Cancer Hosp CT Scan & appt.
Almost daily I found myself lying on the bathroom floor praying for relief from the pain and wondering if that relief was going to come in the form of me going to Heaven. I began preparing for my death by securing a cemetery lot and writing out what I’d like my funeral service to look like. Until one day I shook myself and said, “WHAT ARE YOU DOING?! STOP THAT!”